I have always wanted to design an Image that represents Isaac since we named him on the day he was born. When we found out the meaning behind Isaac Verne was "Laughing Warrior" we knew it was perfect for him and never regretted it. Since then heart families started to call their heart kids "Heart Warriors." This bothered me at first because I felt like I was copycatted. If someone steals this image, I have artwork to prove that I created it and will take legal action if necessary. I might choose to modify it later. I am glad Isaac likes it.
Thursday, March 25, 2021
I have always wanted to design an Image that represents Isaac since we named him on the day he was born. When we found out the meaning behind Isaac Verne was "Laughing Warrior" we knew it was perfect for him and never regretted it. Since then heart families started to call their heart kids "Heart Warriors." This bothered me at first because I felt like I was copycatted. If someone steals this image, I have artwork to prove that I created it and will take legal action if necessary. I might choose to modify it later. I am glad Isaac likes it.
Posted by Djinni at 5:41 PM 0 comments
It has been a while since I have updated this blog. This past Tuesday, Isaac had an ultrasound of his liver. The results said that his liver is slightly worse than before. He still has Fibrosis of the liver and will continue to be monitored through bloodwork, ultrasounds and MRI. Isaac became an adult in January, so he will be having minor changes with his list of doctors. He will also be graduating from High School at the end of May. After careful consideration we have decided against ever having Isaac listed on the liver and heart transplant list. This is a personal decision based on what is best for Isaac. He is an active participant in his healthcare and will continue to have the final say in all decisions about his healthcare. We fully support those who choose transplant and are signed up as potential donors on our ID's.
Posted by Djinni at 5:28 PM 0 comments
Monday, December 26, 2016
2016 Update
Isaac over-all had a good and healthy year. Isaac started eighth grade in the Fall. Isaac was diagnosed with liver disease in December of 2015 and we procrastinated getting his liver biopsy until the 14th of December this year. Isaac had a couple of procedures on the 14th, and the esophagus shows no varicies which is a good sign, his biopsy came back showing he has focal bridging Fibrosis Stage 3, and Mild portal Gastropathy. I will have to research to understand what all of this means, since doctors do not have time to explain details and teach a course about the liver. Anyway, he says we do not have to see him for six months, which is usually a sign that I do not need to worry. Isaac will have an ultrasound to followup on his liver to see how it is doing and an echocardiogram around the same time to followup on his heart situation.
Posted by Djinni at 9:06 PM 0 comments
Monday, June 24, 2013
Yearly Visit a Success
Isaac ready for his yearly visit to PCMC Cardiology |
Isaac started with an Echocardiogram |
Posted by Djinni at 8:05 PM 0 comments
Monday, May 20, 2013
Isaac is a Toughboy
Last night I was reading through my email and I came across a membership permission from a website for kids that Isaac had signed up with. I asked him if he had signed up for this, and he said yes. I looked at the login name with surprise, thinking maybe his dad helped him come up with his login name, so I asked him if he had help picking out a login. Isaac said he did the whole thing all by himself. The name he chose for himself was "Toughboy." Wow I love how he came up with this on his own. I am glad Isaac realizes that he really is tough. It's good to know that he has developed a good self esteem. I am so blessed to have this toughboy as my son, he never ceases to amaze me.
Posted by Djinni at 11:37 AM 0 comments
Wednesday, December 26, 2012
Isaac's Christmas 2012
Posted by Djinni at 6:46 PM 0 comments
Sunday, October 7, 2012
It's Fall and Isaac is back to school
Since Isacc's heart cath, this past June, Isaac's heart has been doing well. We are excited to see him have more energy than he has had for a long time. We hope that Isaac stays healthy, and can wait a long time for his next surgery. His next surgery is most likely his hearing in his left ear, within the next year probably.
Posted by Djinni at 6:31 PM 1 comments