Cardiologist Visit

Isaac had an Echocardiogram & a visit with Dr. Puchalski. Everything looks stable, he still has a leaky tricuspid valve, and the fenestration in his Fontan has not closed yet. Dr Puchalski says that closing the hole will only increase his oxygen intake by 5%. Therefore he says we can hold off doing a Cardiac Catherization for now and just keep an eye on him. Isaac's saturations were around 87% which is excellent for him. Isaac's sats are occasionally around the low 80's which has made the different pediatricians nervous at times. Currently Isaac is sick with a horrible cough which has came with occasional fevers and croup. Isaac is home today resting as much as possible. Isaac's oldest sister Lauren is sick with a bad head cold today and is staying home also. I hope we can all be strong enough to fight the bugs that come our way this season. It is scary what I hear in the news.

The Flu has arrived

I was really hoping Isaac could avoid the flu, however, Isaac got sick with the stomache flu at school today. This is the first time any of my kids have got so sick at school that they lost their stomache contents all over their clothing. Poor Isaac, I felt so bad when I heard he was so sick at school. I hope he never has to go through that kind of humiliation and pain again. He seems to have a mild case of the flu, but it's not over yet, he said his stomache still hurts tonight. I hope the flu shot makes it as mild as possible. It really scares me when Isaac gets sick like this, because he gets more pale blue than anything I have ever had to experience. I am sure it really scared his teacher when she saw it. I hope none of the kids in Isaacs class get sick with the flu he might have spread.

The Dentist

Isaac went to the dentist for his regular cleaning and exam. Isaac usually doesn't cooperate well with the dentist; he prefers doctors. Today was different, he opened his mouth and let the dentist clean his teeth more than ever before. He was especially happy because he got to watch Disney channel & watch Playhouse Disney and Handy Manny. He only had one tiny cavity, which he will get filled on his next visit.

Can't Seem to Escape From Croup

Isaac Can not seem to escape from getting croup. Last week on Thursday I took him to the doctor for a cough he had had for about a week, his Oxygen saturations were down to 83% which worried me and the doctor a bit. Isaac acted pretty normal but looked pale most of the weekend. Early Monday morning the virus turned into the croup. It was very scary due to the fact that he hadn't had croup for a few months and I had trouble finding tubes to hook up to the Nebulizer, he was in a terrible panic struggling to breathe and I was running out of time quickly. With direction from above I finally found what I needed under a mess in my room. I felt like an emotional wreck. I gave him the Dexamethazone shortly after and finally felt some relief. Isaac and I had a little nap & went to the Pediatrician around noon. Isaacs Pediatrician looked at him and noticed his oxygen saturations made it back up to 86% which helped me breathe a little easier. I was thankful he was doing much better. Isaac received his Flu shot, but has been upset about having to get it. He is still sore today. Isaac finally went back to school after missing five days due to the cough & croup. His friends and teacher were happy to see him & he seemed happy too. I just worry that after having steroids so much, his immune system will have a hard time fighting off the different germs around. I pray that he can be strong and avoid getting sick.

Isaac Is Still Motivated

Motivated to keep on sleeping in his bed. Isaac has been harder to motivate than his sisters or anyone else I have ever met. However, Isaac finally is excited about getting stickers on a chart to go to Chuckie Cheeses. He even pooped in the potty for an additional sticker on his chart. Progress is moving so fast, we will have to go to Chuckie Cheeses next week. I tease Isaac how broke I am going to get letting him grow up.

Big Leap in The Right Direction

Isaac has had difficulty trying so sleep in his own bed since his crib was taken away. We have tried everything we could come up with to get him to sleep in it, other than tying him to it. This week his Dad has had the flu, coughing sneezing and so on, we told him if he slept next to Dad, he might catch it and get sick. He tried sleeping in his bed the first couple of nights, but couldn't stay more than five minutes. Finally last night before bed, we were talking about it and he decided if he could get a sticker on his Chucky Cheeses chart he would do it. He did it and he said he wasn't even scared, and stayed there the whole night. We are all so excited, but nobody is more excited than Daddy. Daddy has struggled with this for a very long time and lost lots of sleep, especially after being kicked and pushed.

Kindergarten Graduate

Isaac graduated from Kindergarten today. I asked him if he is sad, and he said "NO, I'm Happy". I thought he would be sad about missing his teachers, and although he will miss them, he is really happy about the transition to 1st grade. He really had great teachers this year, Isaac progressed more this year than he did in any of the preschool years.