Laughing Warrior

Sunday, April 22, 2012

A Mother & Son Date to Remember

Last Monday I had the best date I can remember. Isaac and I went to the local Library and watched "The Muppets" together. Isaac was so sweet, he cuddled up with me, held my hand and laughed a lot. It was truly a special night, that I hope to never forget. It was the first time Isaac and I had alone time together that was not doctor appointment related.

Isaac's Heart Diagnosis and More

Isaac was born with Hypoplastic Right Ventricle with Dextrocardia, Pulmonary Stenosis, and VSD. He also has a leaky Tricuspid valve with moderate leakage. He had a BT shunt 1-17-03, Bi-Directional Glenn removing BT shunt 7-7-03, and the Fontan 6-22-06.
He was also born with Hydrocephalus (no shunt or brain damage), and Unilateral hearing loss (which he outgrew and only has minor hearing loss now). He also was born missing the top portion of his left ear (the pinea) which he will have plastic surgery for in a couple of years. He also has a condition with his left eye called Exotropia which may require surgery. He only has 70% of an airway which causes frequent croup, due to drainage from post nasal drip. We still find new problems occasionally, however his Heart is the most serious of all of his issues.