Can't Seem to Escape From Croup

Isaac Can not seem to escape from getting croup. Last week on Thursday I took him to the doctor for a cough he had had for about a week, his Oxygen saturations were down to 83% which worried me and the doctor a bit. Isaac acted pretty normal but looked pale most of the weekend. Early Monday morning the virus turned into the croup. It was very scary due to the fact that he hadn't had croup for a few months and I had trouble finding tubes to hook up to the Nebulizer, he was in a terrible panic struggling to breathe and I was running out of time quickly. With direction from above I finally found what I needed under a mess in my room. I felt like an emotional wreck. I gave him the Dexamethazone shortly after and finally felt some relief. Isaac and I had a little nap & went to the Pediatrician around noon. Isaacs Pediatrician looked at him and noticed his oxygen saturations made it back up to 86% which helped me breathe a little easier. I was thankful he was doing much better. Isaac received his Flu shot, but has been upset about having to get it. He is still sore today. Isaac finally went back to school after missing five days due to the cough & croup. His friends and teacher were happy to see him & he seemed happy too. I just worry that after having steroids so much, his immune system will have a hard time fighting off the different germs around. I pray that he can be strong and avoid getting sick.

Isaac Is Still Motivated

Motivated to keep on sleeping in his bed. Isaac has been harder to motivate than his sisters or anyone else I have ever met. However, Isaac finally is excited about getting stickers on a chart to go to Chuckie Cheeses. He even pooped in the potty for an additional sticker on his chart. Progress is moving so fast, we will have to go to Chuckie Cheeses next week. I tease Isaac how broke I am going to get letting him grow up.

Big Leap in The Right Direction

Isaac has had difficulty trying so sleep in his own bed since his crib was taken away. We have tried everything we could come up with to get him to sleep in it, other than tying him to it. This week his Dad has had the flu, coughing sneezing and so on, we told him if he slept next to Dad, he might catch it and get sick. He tried sleeping in his bed the first couple of nights, but couldn't stay more than five minutes. Finally last night before bed, we were talking about it and he decided if he could get a sticker on his Chucky Cheeses chart he would do it. He did it and he said he wasn't even scared, and stayed there the whole night. We are all so excited, but nobody is more excited than Daddy. Daddy has struggled with this for a very long time and lost lots of sleep, especially after being kicked and pushed.

Kindergarten Graduate

Isaac graduated from Kindergarten today. I asked him if he is sad, and he said "NO, I'm Happy". I thought he would be sad about missing his teachers, and although he will miss them, he is really happy about the transition to 1st grade. He really had great teachers this year, Isaac progressed more this year than he did in any of the preschool years.

Isaac's Self Portrait

Isaac drew this picture of himself, yesterday in Kindergarten. Isaac told me the picture on his shirt means "No phones allowed" (funny). Also the bump on one of his arms is muscles. It's the best self portrait he has done so far. I Love It, Kindergarten art is the best!

Finally away from the Croup Group again

Last week Isaac woke up with croup on Sunday, Monday, Tuesday and Wednesday; he went to the doctor on Wednesday and she took a look at him. She said it was possibly Para-influenza, however I believe it was just allergies. He finally got over the terrible cough from it. Today he finally went back to school, he said he enjoyed P.E. class. Isaac said they played "Steal the Flag" (I think it was a version of flag football). ANyway, I am out of time, I have to go pick up kids from school.

May Update

Isaac has been staying fairly healthy since my last post. He went to the Cardiologist a few weeks ago and had his scheduled Echocardiogram. Dr. Puchalski met with us after and said his tricuspid valve still leaks the same, and his fenestration in his "Fontan" had not closed like we previously thought. Isaac's SAT's were in the low 80's when he was checked that day, and the doctor said they were a little lower than what he was comfortable with, but he said he would leave it alone for now. However, if his SAT's don't improve he will have Isaac go in for a Heart Catherization and have the hole closed. Isaac's insurance isn't really very good right now, so I hope we can wait for better Insurance after Mike changes jobs.

Currently Isaac spends a lot of his spare time playing video games and watching his favorite shows. He is finally enjoying Kindergarten a lot more, although he still enjoys staying home more than anything. I am nervous about him going to first grade all day soon, but I'll get over it. It's hard watching my baby grow up and leave the nest all-day.