Isaac's PCMC Visit Yesterday

Isaac had his swallow study yesterday and everything was normal. After, we saw Dr. Muntz and discussed his ear issues. Dr. Muntz is going to do a three step surgery to rebuild Isaac's outer ear. He will have to cut away cartilege from Isaacs ribs in his chest each time to use for building his ear. The first of three surgeries will start in about a month and will be every six weeks until it is done. I am nervous and already getting presurgery jitters. I know some of you might be thinking this is a small surgery compared to heart surgery, and it is. However, It is still risky to do any surgery on anyone, especially a kid with heart issues. He is expected to be in the hospital approximately four days after surgery, however I understand things can not always go as expected but I will hope and pray for the best. After his outer ear is fixed, he will be getting his inner ear fixed, due to his hearing loss. but I think I will need more than a six week recess.

Isaac's Room Reveal

Nestled in a comfortable quiet neighborhood of South Jordan is the beautiful country cottage built by Peterson homes. Yesterday we were warmly greeted by many familiar friendly faces as we entered this home for Isaac's room reveal. Barrett Peterson gave a a tour of many of the rooms while we waited for all of the guests to arrive. Danyelle decorated the home quite beautifully in style. The moment arrived when Isaac entered the bedroom decorated in his honor. There on two walls, was was a large mural of beautiful sea life as weremembered from Isaac's Sea World wish. Isaac enjoyed every part of the room down to the last detail. In the room was also a fun table for art and play. This room as well as the rest of the home is a "must see". There are only a couple weeks left to see this in the Parade of Homes, if you haven't seen it yet, set a date and mark it on your calendar. We Thank All who contributed to this special room honoring Isaac, it means so much to our whole family. Here is Isaac along with Barrett Peterson and Danyelle Layton in the room. Behind them you can see the mural and some bubbles with live fish in them. On the bed are some sea life pillows as well as the sheets.

Our Family, from left to right, Mike, Isaac, Brianna, Me (Djinni), and Lauren

Isaac's Upper GI today

Isaac went to Primary Children's (PCMC) today for an Upper GI. I was real worried about him crying about hunger pains because the last time he ate was last night at dinner. He was so excited to go to Primary Children's, that he didn't even mention eating or drinking (an absolute miracle). He was a very good patient and completely cooperated, doing everything he was asked to do. I was amazed because he is such a picky eater and hates milk shakes, and even said the barium milk shake was horrible and he drank it anyway. After the Upper GI, I took him to The Park Station Cafe and he ate his favorite Lunch "Nacho Cheese Doritos" and three small bites of my turkey sandwich. Before we left we visited with Hollie for a few minutes in the PICU waiting room. On our way home we enjoyed a visit with Grandma Southworth at her Nursing Home. Isaac was exhausted when we headed home and took a short nap in the car. Thursday he has to go in for a "Modified Barium Swallow Study" and a visit to Dr. Muntz after.