Laughing Warrior: Polar Express

Friday, December 14, 2007

Polar Express

We had a Wonderful time on the Polar Express yesterday with many Make-A-Wish Families. The trip was sponsored by KBER radio, Trailways bus, Heber Valley Railroad, Cricket and Subway provided Lunch. This photo is from last year when we went, I didn't have good batteries for my camera yesterday. It was exciting to run into an old friend of ours from about ten years ago, although it was bittersweet. Her son is a "Wish Child" due to cancer, it breaks my heart to see them in their situation. All of the kids there were so cute. A few of the kids got up and sang Christmas carols solo something like Karaoke without any background music. The kids were amazing! On the train they handed out bells to the Believers they were all engraved with the words "Believe 2007" It was one trip we will remember for a long time.

Isaac's Heart Diagnosis and More

Isaac was born with Hypoplastic Right Ventricle with Dextrocardia, Pulmonary Stenosis, and VSD. He also has a leaky Tricuspid valve with moderate leakage. He had a BT shunt 1-17-03, Bi-Directional Glenn removing BT shunt 7-7-03, and the Fontan 6-22-06.
He was also born with Hydrocephalus (no shunt or brain damage), and Unilateral hearing loss (which he outgrew and only has minor hearing loss now). He also was born missing the top portion of his left ear (the pinea) which he will have plastic surgery for in a couple of years. He also has a condition with his left eye called Exotropia which may require surgery. He only has 70% of an airway which causes frequent croup, due to drainage from post nasal drip. We still find new problems occasionally, however his Heart is the most serious of all of his issues.