Isaac was born with a rare heart defect requiring several surgeries. He is named Laughing Warrior because he fights an on going battle with his heart and he can still laugh and enjoy life.
Salt Lake Parade of Homes will be featuring fully decorated homes with ten of them having a room featuring a childs wish. Isaac's wish will be featured in one of the Petersen Homes model's. Advance tickets are sold for a discount online for $10.00 each, one of those dollars will go to the Make-A-Wish Foundation of Utah. Isaac's room won't be available to see until after the 5th of August. Please support this good cause if you can. We are very excited to see the "room reveal" in August. Here is the link to buy tickets: https://www.utahparade.com/bf/ut/slhba/mem/tickets.jsp
Isaac was born with Hypoplastic Right Ventricle with Dextrocardia, Pulmonary Stenosis, and VSD. He also has a leaky Tricuspid valve with moderate leakage. He had a BT shunt 1-17-03, Bi-Directional Glenn removing BT shunt 7-7-03, and the Fontan 6-22-06. He was also born with Hydrocephalus (no shunt or brain damage), and Unilateral hearing loss (which he outgrew and only has minor hearing loss now). He also was born missing the top portion of his left ear (the pinea) which he will have plastic surgery for in a couple of years. He also has a condition with his left eye called Exotropia which may require surgery. He only has 70% of an airway which causes frequent croup, due to drainage from post nasal drip. We still find new problems occasionally, however his Heart is the most serious of all of his issues.
1 comments:
I saw a cute picture of Isaac on the KSL site advertising his dream room and the Parade of Homes. I can't wait to see pictures!
Heart Hugs,
Carolyn
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