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Monday, May 26, 2008

Butterfly Miracle and So Forth



Yesterday while we were at the graveyard visiting Isaac's Grandpa's grave, we saw a transparent mylar butterfly balloon float up to the sky with a small flag attached to the bottom. We watched as it floated away, then the wind shifted, bringing the balloon back down to a boy that had lost it from his loved ones grave. What a Memorial Day Miracle it was to see. I have NEVER seen a balloon float away outside towards the sky so high in the air come back down. I am sure the boy will never forget that experience for a long time.

Isaac also was disappointed at first to think there wasn't a gravestone marker with his name on it. We all gasped and my heart sank and explained to Isaac how sad we would all be if he died and the only way he could have a gravestone was to die. He finally understood and didn't stay dissappointed. I hope I will never see the day with any of my children's name on a gravestone of their own. How painful it must be to experience such a loss. I feel bad for the parents I have known and heard of who have had to endure such a trial. My heart goes out to them.

I can kind of relate to the parents who send their sons and daughters to war. It is much like the experience of putting your child through heart surgery and wondering if they will make it out of the hospital. The battle he fights with his heart each day is like some battlefronts, some days go without and event and others are like an ambush attack.

Isaac and his sisters Lauren & Brianna are still sick with Para-influenza today, Isaac is improving although he till has a bad cough. I am hoping they all get better soon & noone else catches it from us. We are avoiding close contact with anyone, however we can't stay in a plastic bubble for too long.

Thursday, May 22, 2008

Today's ENT visit

Today Isaac had a visit with Dr. Muntz (the Ear, Nose & Throat specialist) at P.C.M.C. He said that Isaac needs to be seen by an Orthodontist to determine weather his jaw placement needs to be moved before he can do surgery on his middle ear. He also recommended Isaac having plastic surgery on his outer ear, in about a year (between Kindergarten & first Grade). He said that they have to harvest cartilage from his ribs to use to build the ear. I talked to him about Isaac’s reoccurring croup including the current virus he’s suffering with today and he said the virus can last up to six weeks and he also recommended he have a Modified Barium Swallow Study & an Upper GI to find out if his Esophagus has narrowing and rule out reflux. I will just have to wait and see on all of this possible surgery, I have to be completely convinced all of this will be in Isaac's best interest. I will listen to what the doctors reccommend and My husband and I will make the final decision. My husband and I are not ready to put him through surgery again, unless we are convinced it is worth risking his life for it (as all surgery has it's risks). For sure we understand that feeding issues are vital, however cosmetic surgery for aesthetic reasons are lower on our list although can be thought provoking. His hearing is just a little below normal range on the left side, therefore we will possibly fix it if it is simple and very low risk.

Wednesday, May 21, 2008

The Laughing Warrior Lost His Laugh!

Laughter is priceless.
Last Night Isaac informed me that he had lost his laugh. I asked Isaac how he lost his laugh and he told me that everytime he trys to laugh, all he can do is cough. I had to hold back my laugh and try to be serious as well as everyone else in the family cause it was so cute. A little while ago, Isaac laughed while watching TV and was excited his laugh came back, however, he just told me it is lost again.
If you ever loose your voice, know that Isaac understands because he lost his laugh. Although Isaac still has croup, I am thankful at least that I haven't lost my laugh.

Monday, May 19, 2008

Here We Go Round' The Croup Cycle Again


POP! goes the steroid pills .....
I'm sorry for the sarcasm, but I'm a little frustrated with the Croup again for the third round since May first. On top of that, I have been in bad shape with my dizzy spells caused from my extreme mold allergies. So I'm moody. I have been so busy with poor health for the last few days that my home is going to pot and it gets me frustrated looking at it and not feeling good enough to deal with it. I am finally improving with the dizziness, I am hoping that it continues to get better. I hope my mood improves soon, I am very short tempered.
One thing good that happened today was Isaac's Cardiology visit. Dr. Puchalski said Isaac's tricuspid valve is leaking the same as it was last time he checked, therefore it is not getting any worse. We will see the Cardiologist in a year for his next scheduled visit. I hope everything with Isaac's heart runs smoothly for the next year.
Tomorrow is Isaac's last day of preschool, Hooray! However, at the rate he's coughing tonight he might not even attend. Brianna is also suffering with the croup & Asthma Attacks today. I will probably be up around three in the morning again tonight.

Monday, May 12, 2008

Croup still here

Yesterday Isaac woke up struggling to breathe, Immediately we did a cold saline breathing treatment which helped. I spent a couple of hours at the doctor getting a prescription for him. He still is coughing today troubled with Flem. It is a chilly and rainy day, we hope for sun tomorrow. Isaac's preschool class is scheduled for a field trip to Wheeler Farm tomorrow.

Tuesday, May 6, 2008

1 fruit+1 fruit = 2 Fruit

Isaac just came home from preschool today and he told me "I ate grapes today and they were yummy!" WOW!! Until now, the only fruit Isaac would eat was a Banana. Now Isaac eats 2 fruits. I was so excited I told him I would put it on his blog.

Monday, May 5, 2008

Isaac's Sea World Wish was Chose by Salt Lake Parade of Homes, Peterson Homes for theme of a child's Bedroom

Make-A-Wish called on April 1st to tell us that Isaac was chosen by one of the Salt Lake Parade of Homes builders (Peterson Homes). On May 1st we met with the builder for dinner at Make-A-Wish. KSL channel five was there and we played a game and got to know each other better. It was a fun filled evening. Everyday since that Isaac begs to go to Make-A-Wish, they totally spoil him. He came home with so much loot that night it seemed like he had another birthday. The room reveal will be on July 27th.

Also on Thursday afternoon, Isaac had a mild case of Croup that lasted for a couple of days. I hope this means his Croup episodes will get milder as time goes by.