Oh What a Day!

Monday morning Isaac started the morning with a bloody nose around 8am. Isaac had nose bleeds off an on throughout the day, at some of the most inconvenient times. On the Freeway coming home from the Cardiologist appointment, At 3:15am, 5:15am, 6:00am, and 7:00am. At 6am I prayed desparately for two hours sleep. I was really hoping my prayer would be answered with a yes, at 7:00am I gave up trying to sleep knowing it would just be interupted by more bleeding. Around 7:30am I was thinking Why was the answer No, (I am still feeling the stomach ache left over from the flu & I am really tired). At 8:00am I got my answer. Brianna's 1st grade school teacher called for help with her class due to a flat tire she was experiencing. I consented to help but had difficulty getting there on time with the chaos getting my three kids out the door plus the little girl I babysit. We got there a few minutes late and my kids had to report to the office for being late. I am wondering what the rest of the day will be like. I am hoping I can catch a nap before I turn into a moody mother. I am suprised I have maintained my cool all morning, I feel like an emotional basket case. Yesterday's Cardiology visit turned out Okay, I had good results as well as bad. Isaac's oxygen Saturation was between 90-92 (a complete miracle). His chest pain is still unexplained which worries me. He had two episodes of chest pain yesterday before we went to the Cardiologist both at times he was resting. The Cardiologist said when he has chest pain check his pulse, if it is over 200 bpm call him immediately. We will just keep a close eye on him for another six months and he will have an Echocardiogram then. Some of you hopefully understand my fear and frusteration. I worry myself sick sometimes that his tricuspid valve is leaking and wondering if he will be okay. I just continue to try to live each day to the fullest appreciating the fact that I can still hold him, laugh with him and enjoy watching him grow. I hope this roller coaster is ready for a long ride up and can stay steady for a while without any lower points than this. However I feel like a whimp compared to some of the other families going through tougher times than this, check other Heart family blogs and you'll find much lower areas of the roller coaster. I am so thankful for my Heart Family we have such a wonderful support group, I wish I could do more and hopefully will when I feel better. I also have a wonderful family that cares, I just wish we weren't all so busy with our crazy lives. Hopefully we will find a time this month to get together.